Download a PDF of the policy brief.
A recent McKnight’s Long-Term Care News article highlighted a Pennsylvania nursing home reportedly performing its first onsite bronchoscopy — a procedure typically associated with hospitals and specialty medical centers. The article presented the procedure as part of an emerging […]
This program explores how legislators, district office staff, and community partners can better support constituents and families navigating the challenges of dementia caregiving. Legislative offices are often contacted during moments of crisis — when families are overwhelmed by behavior changes, safety concerns, caregiver burnout, conflicts about care decisions, or uncertainty about available services […]
This program explores how professionals and community-based organizations can better support older adults and families navigating the challenges of dementia care. Professionals are often called upon during moments of crisis — when families are overwhelmed by behavior changes, safety concerns, caregiver burnout, conflicts about care decisions, or uncertainty about available services and next […]
May 18, 2026 – New federal data reveal that the overwhelming majority of U.S. nursing homes are operating with insufficient staffing to meet the basic needs of their residents. According to LTCCC’s report on […]
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
May 15, 2026.
Register for LTCCC’s June webinar.
Presenter: Ernie Tosh Powerpoint Slides (PDF)
May 8, 2026 – The Long Term Care Community Coalition (LTCCC) today released new, facility-level data on antipsychotic (AP) drugging in U.S. nursing homes, highlighting both the continuing prevalence of antipsychotic use and disturbing limitations in the publicly available federal data. US AP Drugging Q4 2025
Antipsychotic drugs are powerful medications associated with […]
This program explores how employers, HR professionals, and workplace leaders can better support employees who are caring for a family member or loved one living with dementia. Many employees balance work responsibilities with the emotional and practical demands of caregiving, often experiencing stress, burnout, schedule disruptions, and reduced productivity. The session highlights the […]
This program explores how assisted living and home care providers can strengthen their approach to supporting individuals living with dementia through practical, person-centered strategies. Staff often encounter complex care situations and may feel uncertain about how to respond to changing communication, behaviors, and needs. The session highlights common challenges in dementia care and […]
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
April 30, 2026.
This program explores how faith communities can play a meaningful role in supporting individuals caring for loved ones living with dementia. Caregiving is often an invisible and isolating experience, and many caregivers within congregations may be struggling without openly asking for help. The session highlights the unique opportunity for faith leaders and community members to […]
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
April 15, 2026.
Register for LTCCC’s May webinar.
Presenter: Richard Mollot, LTCCC Executive Director Powerpoint Slides (PDF)
This program provides an updated look at nursing home performance in the Hudson Valley region, with a focus on staffing levels, federal quality ratings, and antipsychotic drugging trends. The program also offers practical guidance on dementia care standards and residents’ rights, including the appropriate use of antipsychotic medications, the importance of informed consent, and the […]
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
March 31, 2026.
Presenter: Mary Ellen Dellefield, PhD, RN, FAAN
Powerpoint Slides (PDF)
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
March 16, 2026.
March 13, 2026 – The Long Term Care Community Coalition is pleased to release two new data reports: Nursing Home Citations and Nursing Home Penalties. These user-friendly datasets allow consumers to identify when their facility has been cited for failing to meet minimum standards and enable journalists, policymakers, and researchers to identify […]
Give Nursing Home Residents the Basics They Deserve—Raise the PNA
March 6, 2026 – The Personal Needs Allowance (PNA) in New York has been stuck at $50 per month for over three decades. The dignity of our elders and individuals with disabilities should never be compromised by financial hardship, yet for too […]
March 5, 2026 – New federal data reveal that the overwhelming majority of U.S. nursing homes are operating with insufficient staffing to meet the basic needs of their residents. According to LTCCC’s report on […]
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
March 2, 2026.
February 25, 2026 – The Long Term Care Community Coalition (LTCCC) today released its updated national nursing home provider report. The updated data, derived from the federal Provider Information database, reveal persistent quality and staffing concerns affecting hundreds of thousands of residents nationwide.
The report, including searchable information on ratings, staffing, enforcement actions, […]
This program provides an updated look at regional nursing home performance, with a focus on staffing levels, quality ratings, pressure ulcer rates, and antipsychotic drugging trends. In addition to the data briefing, the program offers practical guidance on addressing care concerns, including residents’ rights, strategies for escalating unresolved issues, and options for seeking help both […]
Presenter: Sam Brooks, Director of Public Policy, National Consumer Voice for Quality Long-Term Care
Powerpoint Slides (PDF) Consumer Voice Report – Where Does All the Money Go?
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
February 17, 2026.
January 28, 2026 – CMS is moving to repeal federal minimum staffing standards for nursing homes – an action that would weaken one of the most important resident safety protections in decades. Today, the Long Term Care Community Coalition (LTCCC) submitted comments strongly opposing this repeal. Our comments explain that chronic understaffing is […]
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
January 30, 2026.
January 28, 2026 – Over the course of 2025, the Elder Justice Newsletter, a collaboration of the Long Term Care Community Coalition and the Center for Medicare Advocacy, dropped six hard-hitting issues exposing dangerous patterns in U.S. nursing homes where regulators identified serious care failures yet failed to identify […]
Presenters: Ruth Ann Dorrill, Caitlin Foster, Rebecca Gorges, and Shanna Weitz
Powerpoint Slides (PDF) – Falls OIG Report – Falls Powerpoint Slides (PDF) – Special Focus Facilities OIG Report – Special Focus Facilities
January 16, 2026 – New federal data reveal that the overwhelming majority of U.S. nursing homes are operating with insufficient staffing to meet the basic needs of their residents. According to LTCCC’s report on […]
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
January 15, 2026.
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
December 30, 2025.
In the Elder Justice Newsletter, we highlight citations, including deficiencies related to abuse, neglect, and substandard care, that have been identified as not causing any resident harm. The goal of this brief newsletter is to shed light on the issue of so-called “no harm” deficiencies, which typically result in no fine or penalty to the […]
December 16, 2025 – CMS has once again delayed implementation of the nursing home ownership disclosure requirements enacted by Congress in Section 6101 of the Affordable Care Act (ACA). Specifically, it has indefinitely suspended the off-cycle Medicare revalidation process that it established as the primary vehicle for collecting newly required […]
Presenter: Ed Dudensing Powerpoint Slides (PDF)
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
December 15, 2025.
This program provides an updated look at regional nursing home performance, with a focus on staffing levels, quality ratings, pressure ulcer rates, and antipsychotic drugging trends. In addition to the data briefing, the program offers practical guidance on addressing care concerns, including residents’ rights, strategies for escalating unresolved issues, and options for seeking help both […]
December 3, 2025 – The Long Term Care Community Coalition is deeply disheartened by the Centers for Medicare & Medicaid Services’ decision to repeal the federal minimum staffing standards for nursing homes. This action removes a long-overdue national floor for staffing – standards that, while modest, provided a basic safeguard […]
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
December 1, 2025.
Widespread fraud and chronic accountability failures continue to plague the U.S. nursing […]
Presenter: Eilon Caspi, PhD Powerpoint Slides (PDF)
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
November 17, 2025.
November 13, 2025 — The Long Term Care Community Coalition (LTCCC) has launched a Nursing Home Staffing Resource Center, a one-stop hub for data tools and practical guides that help the public and stakeholders determine whether facilities are staffing […]
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
October 31, 2025.
This page provides a one-stop access point to LTCCC’s staffing data, analyses, and practical tools.
Staffing is the most important indicator of a nursing home’s safety and quality. Under federal law, facilities must have sufficient nursing staff with appropriate competencies and skill sets to ensure each resident attains or maintains the highest practicable well‑being based on […]
Presenter: David Lipschutz, Co-Director of the Center for Medicare Advocacy
Powerpoint Slides (PDF) LTCCC Fact Sheet: Medicare Coverage of Skilled Nursing and Skilled Therapy Services
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
October 15, 2025.
This program presents the latest Hudson Valley nursing home staffing data, offering insights into current trends and facility performance across the region. It also guides participants on how to access and effectively use the data to support advocacy and oversight efforts. The program concludes with a discussion on the power of family councils, highlighting how […]
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
September 30, 2025.
This page highlights a variety of studies and reports exploring dementia care outside of institutional settings.
Resources
Patient and Caregiver Outcomes of Health System, Community-Based, and Usual Dementia CareA Prespecified Analysis of the Dementia Care Study (D-CARE) Randomized Clinical Trial. (2025). David B. Reuben, Alan B. Stevens, Thomas M. Gill, et al.
Presenters: Regan Bailey (Justice in Aging), Liam Mcgivern (Justice in Aging), and Toby Edelman (Center for Medicare Advocacy)
Complaint Brief of Amicus Curiae Toby S. Edelman Order Granting Class Certification (April 22, 2025) Memorandum Opinion (April 22, 2025) […]
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
September 15, 2025.
September 10, 2025 – Increasing numbers of people are receiving dementia care at home or in assisted living. Unfortunately, there are limited user-friendly resources to ensure that individuals in these settings receive appropriate services and care. To help meet these challenges and support […]
In the Elder Justice Newsletter, we highlight citations, including deficiencies related to abuse, neglect, and substandard care, that have been identified as not causing any resident harm. The goal of this brief newsletter is to shed light on the issue of so-called “no harm” deficiencies, which typically result in no fine or penalty to the […]
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
September 2, 2025.
August 27, 2025 – On August 25, NY Attorney General James announced a significant settlement against a major New York nursing home chain, the Upstate Services Group, which operates 17 nursing homes across the state. The facility at the focus of this action, the Van Duyn nursing home in […]
August 25, 2025 – Today LTCCC is releasing its latest quarterly report on the staffing levels for every U.S. nursing home (in compliance with federal reporting requirements). These data, accessible to the public at […]
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
August 15, 2025.
On July 30, 2025, the U.S. Senate Special Committee on Aging held a hearing to examine the ongoing crisis of elder abuse and neglect. In response, the Long Term Care Community Coalition (LTCCC) submitted written testimony for the official hearing record.
Our testimony highlights the urgent need for stronger protections, meaningful enforcement, […]
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
July 31, 2025.
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
July 15, 2025.
July 3, 2025—The Long Term Care Community Coalition is deeply disheartened by the passage of the so-called “Big Beautiful Bill” or H.R. 1, now approved by both the House and the Senate. This sweeping legislation will inflict profound and lasting harm on nursing home residents, individuals receiving home- and community-based services, and families who rely […]
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
June 30, 2025.
On June 23, 2025 the Long Term Care Community Coalition joined nearly 100 national, state, and local organizations in opposing a proposed Senate reconciliation bill that would cut Medicaid funding and delay implementation of the federal nursing home minimum staffing rule. These changes would jeopardize access to long-term care services for millions of older adults […]
In the Elder Justice Newsletter, we highlight citations, including deficiencies related to abuse, neglect, and substandard care, that have been identified as not causing any resident harm. The goal of this brief newsletter is to shed light on the issue of so-called “no harm” deficiencies, which typically result in no fine or penalty to the […]
Presenters: LTCCC’s Richard Mollot (Executive Director), Hayley Cronquist (Associate Director), Rachel Farber (Policy Fellow) PowerPoint Slides (PDF) Dementia Care in the Community Toolkit
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
June 16, 2025.
June 16, 2025 – Today LTCCC is releasing its new Dementia Care in the Community Toolkit, a free online resource developed to support high-quality, person-centered dementia care for individuals living at home or in assisted living.
A growing number of people living with dementia receive care outside of nursing homes, yet there are no federal […]
As dementia progresses, individuals and their families may face complex decisions about care, comfort, and quality of life. This page offers resources on hospice and palliative care to support compassionate, person-centered approaches during the later stages of dementia. These resources provide guidance on managing pain and distress, honoring individual values and goals, and navigating end-of-life […]
High-quality dementia care starts with informed, compassionate caregivers. This page provides resources for dementia care trainings designed to strengthen knowledge, build practical skills, and promote person-centered approaches across all care settings. Whether you’re a family member, home care aide, assisted living staff member, or healthcare professional, these training programs offer valuable guidance on communication, behavior […]
Individuals living with dementia are at increased risk for preventable health issues like pressure ulcers and urinary tract infections (UTIs), especially when mobility or communication is limited. These conditions can cause significant pain, distress, and complications if not addressed promptly. This page includes resources to help caregivers and providers recognize early signs, implement prevention strategies, […]
Proper nutrition and hydration are critical to the health and well-being of individuals living with dementia, yet cognitive and physical changes can make eating and drinking more challenging over time. This page features resources to help caregivers and care providers support safe, enjoyable mealtimes and prevent common issues like weight loss, dehydration, and swallowing difficulties.
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Engaging in meaningful activities is essential to maintaining quality of life for individuals living with dementia. The right activities can support emotional well-being, preserve abilities, and reduce distress. This page offers resources with ideas and guidance for selecting and adapting activities that match a person’s interests, history, and current capabilities. Whether in the home, in […]
Psychotropic drugs—such as antipsychotics, antidepressants, and sedatives—are sometimes prescribed to individuals living with dementia to manage behavioral symptoms. However, these medications carry serious risks and are not the most effective or appropriate response. This page includes resources to help families, caregivers, and professionals understand the potential harms, explore safer alternatives, and make informed decisions about […]
This card is also available for downloading and printing on an 8.5 x 11 size paper.
This card is also available for downloading and printing on an 8.5 x 11 size paper.
This card is also available for downloading and printing on an 8.5 x 11 size paper.
This card is also available for downloading and printing on an 8.5 x 11 size paper.
The Long Term Care Community Coalition’s Dementia Care Toolkits are designed to support quality, person-centered care for individuals living with dementia—whether in a nursing home or in the community. Use the links below to explore fact sheets, care cards, and other resources tailored to different care settings: Nursing Homes and
