The Long Term Care Community Coalition, along with California Advocates for Nursing Home Reform, Center for Medicare Advocacy, Consumer Voice, Justice in Aging, and Michigan Elder Justice Initiative, developed a framework to address longstanding problems in nursing homes. The framework provides recommendations in six critical areas that need reform: (1) staffing and workforce; (2) regulation […]
Download LTCCC’s recommendations for improving nursing home safety, dignity, and financial integrity or read the pdf below.
Download LTCC’s new policy brief, “LTC Medicaid Funding: Separating Fact from Fiction” or read directly from the document below.
The following report presents the findings of LTCCC’s regional analysis of New York State nursing home care.
In addition to the report, we have developed a searchable table with relevant information on all nursing homes in the state, including ratings, ownership type, staffing levels, and fines for substandard care. Nursing homes can also be searched and […]
Substandard care, abuse, and neglect are longstanding concerns for nursing home residents. Decades of federal reports have documented widespread and persistent issues in nursing homes nationwide, from inadequate infection control practices to low staffing to inappropriate antipsychotic drug use. However, in recent years, it has become evident that residents are increasingly at risk of experiencing […]
The quality and safety of nursing homes are longstanding public concerns. Numerous studies over the years have identified widespread and significant deficiencies in care, including serious abuse and neglect, and degrading, inhumane conditions.
In light of these concerns, and the widespread persistence of substandard care and abuse, we undertook this analysis to compare the experiences of […]
Nursing home staffing, quality, and safety continue to be serious concerns for seniors and their families across New York. To help address these issues, LTCCC, with funding from the New York Community Trust, conducted two assessments:
Following are our report and information on the nursing homes in each state with what we are calling Chronic Deficiencies – three or more citations for the same regulatory standard in the three years covered on the federal website, Nursing Home Compare. The lists, compiled in the fall of 2016, include over 6,000 […]
This report provides the results of an assessment of the circumstances in which harm is identified when a nursing home is cited for deficient care, abuse or neglect. Numerous studies have identified problems with the ability of state Survey Agencies (SAs) to adequately identify violations of minimum standards. As a result, too many nursing home […]
November 2016. With funding from the National Consumer Voice, LTCCC has adopted a national guide for NY State, to help New Yorkers facing LTC decisions gain a better understanding of their choices and options and how they can advocate for themselves to get the services they need and want.
National Report: Safeguarding NH Residents & Program Integrity: A National Review of State Survey Agency Performance CLICK HERE
NY State Report: Safeguarding Residents & Program Integrity in New York State Nursing Homes: An Assessment of Government Agency Performance CLICK HERE
NY State Report: Executive Summary CLICK HERE
The following interactive charts provide […]
Left Behind: The Impact Of The Failure To Fulfill The Promise of The National Campaign To Improve Dementia Care.
This report assesses the effectiveness of the national “Partnership” in reducing the dangerous and unnecessary drugging of nursing home residents.
Left Out: Results Of A Survey Of Nursing Home Resident Representatives On The National Campaign To Improve Dementia Care
This brief presents the first of two assessments undertaken by LTCCC on the effectiveness, to date, of the national campaign to address the widespread, inappropriate and dangerous use of antipsychotic drugs on nursing home residents.
This study was conducted to gather financial and programmatic information on the nursing home surveillance systems of a select sample of states across the U.S. The study also aimed to gain insights into the challenges facing the state offices responsible for ensuring quality and safety in our nation’s nursing homes and other settings.
This report, released October 2012, presents an overview of the federal regulations that may be relevant when antipsychotic medications are used and the specific data tags, called “F-Tags,” that apply to each of the regulations and that are used by state and federal surveyors to code deficiencies. A summary and citation to the applicable federal […]
The results of a Commonwealth Fund project detailing the importance of consumer participation in states’ Medicaid nursing facility reimbursement policy making. The products of the project include: a primer for consumers participation, a brief for policy makers on the need to have consumers “at the table,” and a series of webinars for consumers explaining Medicaid […]
A study of the status of care and quality of life in New York State assisted living facilities and residences and the state’s oversight and enforcement of state rules.
Government Monitoring & Oversight of Nursing Home Care: The Relationship Between Federal and State Agencies
This report presents an in-depth assessment of how well the state and federal inspection agencies are working to jointly enforce minimum safety, health and quality of life standards in U.S. nursing homes.
This report provides an overview and assessment of long term care programs in terms of consumers’ needs and desires and makes recommendations for how system restructuring can better meet the needs of consumers.
This study gathered information from the 35 states using a case-mix reimbursement system to reimburse nursing homes for the care of their Medicaid residents (including NYS). The report gives detailed information on how these states are encouraging access, for hard to place residents, quality as well as efficiency. Using such information as well as telephone […]
With funding from the New York Community Trust, LTCCC hosted two roundtable discussions on the future of nursing homes in NY State. The roundtables brought together leaders from government, provider, consumer, worker and philanthropy to identify the challenges and develop recommendation for future action. This report describes the roundtables and presents over 100 recommendations for […]
This report provides an overview of pay for performance for stakeholder and policy makers, including special sections on issues and consumer concerns, selected experiences to date and recommendations for ensuring that a pay for performance program truly improves nursing home resident care and is not merely a bonus awarded to “good” providers.
New York’s Single Point of Entry for Long Term Care: A First Year Assessment of Consumer Experience With Recommendations for the Future
This reports examines first year experience with NY Connects, NY State’s single point of entry for long term care, and provides recommendations to ensure that NY Connects truly serves New York’s diverse consumer population as it is further implemented. The report includes a state-wide survey of New Yorkers’ knowledge of, and experience with, the system.
Vulnerable nursing home residents depend on the state to hold nursing home providers accountable for the care they receive by identifying problems during regular inspections and through investigations of complaints. This report, supported with a grant from the New York Community Trust, examines the effectiveness of each regional office in ensuring resident safety and quality […]
A white paper for the new administration & state leadership to facilitate implementation of policies that better meet the future needs and preferences of all our citizens.
Despite strong legal requirements for nursing homes to provide good care and dignified conditions for residents, the nursing home crisis continues. This report, supported with a grant from the Robert Sterling Clark Foundation, identifies the primary legal mandates that are too often disregarded by both nursing homes and government surveillance and provides pragmatic as well […]
Federal Civil Monetary Penalties (CMPs) and State CMPs/fines are imposed by the regulatory agencies that license nursing homes if a nursing home does not comply with regulatory standards. These fines can be used to fund innovative programs to improve the lives of nursing home residents. This study, supported with a grant from the Commonwealth Fund, […]
Single Point of Entry for Long Term Care and Olmstead: An Introduction and National Perspective for Policy Makers, Consumers and Advocacy Organizations
A study, supported by the Robert Sterling Clark Foundation, of POE and Olmstead implementation across the U.S. and a survey of groups that work to improve care for consumers.
Study, supported by the NY Community Trust, of the effectiveness of the effectiveness of the inspection and complaint systems.
Description of a project in two nursing homes in New York City with a Ten-Step Guide to Improving Working Conditions.
Report on a study of consumer experience with postings in their nursing home(s), with recommendations for regulatory improvement.
What Makes for a Good Working Condition for Nursing Home Staff: What Do Direct Care Workers Have to Say?
This study is based on focus groups conducted in six nursing homes in NYC.
This is the final report of an in-depth three year study of assisted living. It includes an action agenda for consumers, providers and policy makers to help fulfill the promise of assisted living.
This report, part of a three year study, describes findings from ten on-site visits to assisted living facilities in NYS by project staff. It discusses aging-in place, autonomy, risk-taking, staffing, finances and regulations.
This position paper gives evidence of a staffing crisis in New York State nursing homes and documents the need for mandating staffing ratios in New York State nursing homes.
Improving the Option: Consumers’ Perspectives on New York State’s Managed Long Term Care Demonstration Project
This report, from LTCCC’s committee on Managed Long Term Care, offers recommendations for protecting consumers of managed long term care. 1999.
This resource for nursing homes lists findings from interviews with nursing home staff. It offers concrete examples of ways to reduce costs and enhance revenue while maintaining quality.
Subacute Care in Nursing Homes: What You Should Know for Those Seeking Subacute Care or Traditional Nursing Home Care
What is subacute care? What are the concerns and benefits? What questions to ask. For consumers and those working with consumers.
An Easy-to Read Guide for Residents, Families and Staff: Rules and Regulations Governing New York State Nursing Homes
The rules nursing homes must follow in lay language. 1995.
Includes differences in sponsorship, location and size
Consumers’ Guide to Nursing Home Care: The Use of Restraints. A brochure for nursing home residents and their families; written a number of years ago, but still relevant. It explains when restraints can and cannot be used and lists the rights that residents and family members have. It has a checklist for identifying abuse […]
Measuring the Quality of Resident-Staff Interactions. This is a questionnaire, developed under a New York State Department of Health grant, to use with nursing home residents to measure the quality of resident-staff interactions.