Webinar: Staff Fear of Retaliation: A Barrier for Reporting Abuse and Neglect in Nursing Homes
Register for LTCCC’s December webinar.
Presenter: Eilon Caspi, PhD Powerpoint Slides (PDF)
Senior Care Policy Brief: Special Focus Failure
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The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
November 17, 2025.
NEWSFLASH
- The Special Focus Facility (SFF) Program, […]
Alert: LTCCC Launches Nursing Home Staffing Resource Center
November 13, 2025 — The Long Term Care Community Coalition (LTCCC) has launched a Nursing Home Staffing Resource Center, a one-stop hub for data tools and practical guides that help the public and stakeholders determine whether facilities are staffing […]
Senior Care Policy Brief: Oversight on Pause — Residents at Risk
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The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
October 31, 2025.
NEWSFLASH
- Due to the ongoing federal government shutdown, […]
Nursing Home Staffing Resource Center
This page provides a one-stop access point to LTCCC’s staffing data, analyses, and practical tools.
Staffing is the most important indicator of a nursing home’s safety and quality. Under federal law, facilities must have sufficient nursing staff with appropriate competencies and skill sets to ensure each resident attains or maintains the highest practicable well‑being based on […]
Webinar: Navigating Medicare Advantage
Register for LTCCC’s November webinar.
Presenter: David Lipschutz, Co-Director of the Center for Medicare Advocacy Powerpoint Slides (PDF) LTCCC Fact Sheet: Medicare Coverage of Skilled Nursing and Skilled Therapy Services
Senior Care Policy Brief: Genesis Healthcare’s Financial Collapse
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The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
October 15, 2025.
NEWSFLASH
- Genesis Healthcare, which operates 175 skilled […]
Hudson Valley October Update: Staffing Data and Family Councils
Register for future programs here.
This program presents the latest Hudson Valley nursing home staffing data, offering insights into current trends and facility performance across the region. It also guides participants on how to access and effectively use the data to support advocacy and oversight efforts. The program concludes with a discussion on the […]
Senior Care Policy Brief: The Truth About Falls
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The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
September 30, 2025.
NEWSFLASH
- A new federal investigation by the […]
External Resources: Miscellaneous Research
This page highlights a variety of studies and reports exploring dementia care outside of institutional settings.
Resources
Patient and Caregiver Outcomes of Health System, Community-Based, and Usual Dementia CareA Prespecified Analysis of the Dementia Care Study (D-CARE) Randomized Clinical Trial. (2025). David B. Reuben, Alan B. Stevens, Thomas M. Gill, et al.
Webinar: Nursing Home Oversight and Disability Law
Presenters: Regan Bailey (Justice in Aging), Liam Mcgivern (Justice in Aging), and Toby Edelman (Center for Medicare Advocacy)
Complaint Brief of Amicus Curiae Toby S. Edelman Order Granting Class Certification (April 22, 2025) Memorandum Opinion (April 22, 2025) […]
Senior Care Policy Brief: Who’s Protecting Residents?
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The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
September 15, 2025.
NEWSFLASH
- The Centers for Medicare & Medicaid Services […]
LTCCC Alert: Dementia Care in the Community Resources Now Available in Spanish
September 10, 2025 – Increasing numbers of people are receiving dementia care at home or in assisted living. Unfortunately, there are limited user-friendly resources to ensure that individuals in these settings receive appropriate services and care. To help meet these challenges and support […]
Kicked out on Christmas: Elder Justice “No Harm” Newsletter (Volume 7, Issue 5)
In the Elder Justice Newsletter, we highlight citations, including deficiencies related to abuse, neglect, and substandard care, that have been identified as not causing any resident harm. The goal of this brief newsletter is to shed light on the issue of so-called “no harm” deficiencies, which typically result in no fine or penalty to the […]
Senior Care Policy Brief: Protecting Care, Not Profits
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The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
September 2, 2025.
NEWSFLASH
- New York Attorney General James announced […]
Special Alert on NYS Attorney General’s Settlement with Upstate Services Group “to Stop Resident Neglect and Financial Fraud” at its Van Duyn Nursing Home GallerySpecial Alert on NYS Attorney General’s Settlement with Upstate Services Group “to Stop Resident Neglect and Financial Fraud” at its Van Duyn Nursing Home
Special Alert on NYS Attorney General’s Settlement with Upstate Services Group “to Stop Resident Neglect and Financial Fraud” at its Van Duyn Nursing Home
August 27, 2025 – On August 25, NY Attorney General James announced a significant settlement against a major New York nursing home chain, the Upstate Services Group, which operates 17 nursing homes across the state. The facility at the focus of this action, the Van Duyn nursing home in […]
LTCCC Alert: Nursing Homes Provide Far Less Care Than Residents Require (Q1 2025) GalleryLTCCC Alert: Nursing Homes Provide Far Less Care Than Residents Require (Q1 2025)
Alabama, Alaska, Alerts, Arizona, Arkansas, California, Colorado, Connecticut, Delaware, District of Columbia, Florida, Georgia, Hawaii, Idaho, Illinois, Indiana, Iowa, Kansas, Kentucky, Louisiana, Maine, Maryland, Massachusetts, Michigan, Minnesota, Mississippi, Missouri, Montana, Nebraska, Nevada, New Hampshire, New Jersey, New Mexico, New York, North Carolina, North Dakota, Nursing Home Information, Ohio, Oklahoma, Oregon, Pennsylvania, Rhode Island, South Carolina, South Dakota, Staffing, Tennessee, Texas, Utah, Vermont, Virginia, Washington, West Virginia, Wisconsin, Wyoming
LTCCC Alert: Nursing Homes Provide Far Less Care Than Residents Require (Q1 2025)
The following is an alert for LTCCC’s Q1 2025 staffing report. Download national, state, community, and facility-level data at NursingHome411.org.
August 25, 2025 – Today LTCCC is releasing its latest quarterly report on the staffing levels for every U.S. nursing home (in compliance with federal reporting requirements). These data, accessible to the public at […]
Senior Care Policy Brief: Billions for Nursing Homes – Where’s the Oversight?
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The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
August 15, 2025.
NEWSFLASH
LTCCC Testimony: U.S. Senate Special Committee on Aging Hearing on Combating Elder Abuse & Neglect
On July 30, 2025, the U.S. Senate Special Committee on Aging held a hearing to examine the ongoing crisis of elder abuse and neglect. In response, the Long Term Care Community Coalition (LTCCC) submitted written testimony for the official hearing record.
Our testimony highlights the urgent need for stronger protections, meaningful enforcement, […]
Senior Care Policy Brief: Financial Games, Human Costs
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The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
July 31, 2025.
NEWSFLASH
Senior Care Policy Brief: Big Bill, Big Cuts
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The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
July 15, 2025.
NEWSFLASH
- In the largest health care fraud enforcement action […]
LTCCC’s Statement on Passage of the “Big Beautiful Bill”
July 3, 2025—The Long Term Care Community Coalition is deeply disheartened by the passage of the so-called “Big Beautiful Bill” or H.R. 1, now approved by both the House and the Senate. This sweeping legislation will inflict profound and lasting harm on nursing home residents, individuals receiving home- and community-based services, and families who rely […]
Senior Care Policy Brief: Care Compare Gets a Makeover
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The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
June 30, 2025.
NEWSFLASH
Joint Statement: Letter to Senate Opposing Reconciliation Bill
On June 23, 2025 the Long Term Care Community Coalition joined nearly 100 national, state, and local organizations in opposing a proposed Senate reconciliation bill that would cut Medicaid funding and delay implementation of the federal nursing home minimum staffing rule. These changes would jeopardize access to long-term care services for millions of older adults […]
Silenced in the Shower: Elder Justice “No Harm” Newsletter (Volume 7, Issue 4)
In the Elder Justice Newsletter, we highlight citations, including deficiencies related to abuse, neglect, and substandard care, that have been identified as not causing any resident harm. The goal of this brief newsletter is to shed light on the issue of so-called “no harm” deficiencies, which typically result in no fine or penalty to the […]
Webinar: Dementia Care in the Community
Presenters: LTCCC’s Richard Mollot (Executive Director), Hayley Cronquist (Associate Director), Rachel Farber (Policy Fellow) PowerPoint Slides (PDF) Dementia Care in the Community Toolkit
Senior Care Policy Brief: Follow the Money
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
June 16, 2025.
NEWSFLASH
LTCCC Alert: New Resources to Improve Dementia Care for People Living at Home and Assisted Living GalleryLTCCC Alert: New Resources to Improve Dementia Care for People Living at Home and Assisted Living
Alabama, Alaska, Alerts, Arizona, Arkansas, California, Colorado, Connecticut, Delaware, Dementia Care in the Community, District of Columbia, Florida, Georgia, Hawaii, Idaho, Illinois, Indiana, Iowa, Kansas, Kentucky, Louisiana, Maine, Maryland, Massachusetts, Michigan, Minnesota, Mississippi, Missouri, Montana, Nebraska, Nevada, New Hampshire, New Jersey, New Mexico, New York, North Carolina, North Dakota, Ohio, Oklahoma, Oregon, Pennsylvania, Rhode Island, South Carolina, South Dakota, Tennessee, Texas, Utah, Vermont, Virginia, Washington, West Virginia, Wisconsin, Wyoming
LTCCC Alert: New Resources to Improve Dementia Care for People Living at Home and Assisted Living
June 16, 2025 – Today LTCCC is releasing its new Dementia Care in the Community Toolkit, a free online resource developed to support high-quality, person-centered dementia care for individuals living at home or in assisted living.
A growing number of people living with dementia receive care outside of nursing homes, yet there are no federal […]
External Resources: Hospice and Palliative Care
As dementia progresses, individuals and their families may face complex decisions about care, comfort, and quality of life. This page offers resources on hospice and palliative care to support compassionate, person-centered approaches during the later stages of dementia. These resources provide guidance on managing pain and distress, honoring individual values and goals, and navigating end-of-life […]
External Resources: Dementia Care Trainings and Toolkits
High-quality dementia care starts with informed, compassionate caregivers. This page provides resources for dementia care trainings designed to strengthen knowledge, build practical skills, and promote person-centered approaches across all care settings. Whether you’re a family member, home care aide, assisted living staff member, or healthcare professional, these training programs offer valuable guidance on communication, behavior […]
External Resources: Pressure Ulcers and Urinary Tract Infections
Individuals living with dementia are at increased risk for preventable health issues like pressure ulcers and urinary tract infections (UTIs), especially when mobility or communication is limited. These conditions can cause significant pain, distress, and complications if not addressed promptly. This page includes resources to help caregivers and providers recognize early signs, implement prevention strategies, […]
External Resources: Nutrition and Hydration
Proper nutrition and hydration are critical to the health and well-being of individuals living with dementia, yet cognitive and physical changes can make eating and drinking more challenging over time. This page features resources to help caregivers and care providers support safe, enjoyable mealtimes and prevent common issues like weight loss, dehydration, and swallowing difficulties.
[…]
External Resources: Dementia Appropriate Activities
Engaging in meaningful activities is essential to maintaining quality of life for individuals living with dementia. The right activities can support emotional well-being, preserve abilities, and reduce distress. This page offers resources with ideas and guidance for selecting and adapting activities that match a person’s interests, history, and current capabilities. Whether in the home, in […]
External Resources: Psychotropic Drugs
Psychotropic drugs—such as antipsychotics, antidepressants, and sedatives—are sometimes prescribed to individuals living with dementia to manage behavioral symptoms. However, these medications carry serious risks and are not the most effective or appropriate response. This page includes resources to help families, caregivers, and professionals understand the potential harms, explore safer alternatives, and make informed decisions about […]
Dementia Care Card: Everyday Engagement for Individuals Living with Dementia
This card is also available for downloading and printing on an 8.5 x 11 size paper.
Dementia Care Card: Compassionate Care: Tips for Families and Care Teams
This card is also available for downloading and printing on an 8.5 x 11 size paper.
Dementia Care Card: Communication Tips for Dementia Caregivers
This card is also available for downloading and printing on an 8.5 x 11 size paper.
Dementia Care Card: Home Safety Tips
This card is also available for downloading and printing on an 8.5 x 11 size paper.
Dementia Care Toolkits
The Long Term Care Community Coalition’s Dementia Care Toolkits are designed to support quality, person-centered care for individuals living with dementia—whether in a nursing home or in the community. Use the links below to explore fact sheets, care cards, and other resources tailored to different care settings: Nursing Homes and
External Resources: Therapy Services
Therapy services can play a vital role in supporting the health, independence, and quality of life of individuals living with dementia. This page includes resources on occupational, physical, and speech therapy interventions that are tailored to the unique needs and abilities of people with dementia. These services can help maintain functional skills, reduce fall risk, […]
External Resources: Informed Consent
Informed consent is a fundamental right that ensures individuals understand and voluntarily agree to decisions about their care. For people living with dementia, navigating consent can become more complex as cognitive changes progress. This page includes external resources to help caregivers, families, and professionals support ethical, person-centered decision-making.
Resources
A Practical Guide to […]
External Resources: Home Safety
Creating a safe and supportive home environment is essential for individuals living with dementia. This page includes resources to help caregivers, families, and care providers identify and reduce potential hazards, promote independence, and respond to changing needs over time. From practical home modification tips to guidance on preventing wandering and falls, these tools can support […]
External Resources: Dementia-Friendly Initiatives
This page features a selection of external resources on innovative, dementia-friendly initiatives designed to enhance quality of life and promote dignity for individuals living with dementia. From small-scale, homelike models of care to larger community concepts like dementia villages, these approaches emphasize safety, autonomy, and social connection. Whether you’re a caregiver, advocate, policymaker, or provider, […]
External Resources: Dementia Care Navigation: Tips and Tools for Caregivers
Caring for someone with dementia can be both rewarding and challenging. As the condition progresses, caregivers often face new obstacles in communication, daily routines, and emotional well-being. This page provides resources to help caregivers navigate these challenges, promote independence, and enhance the quality of life for individuals living with dementia—whether at home or in a […]
External Resources: Non-Pharmacological Approaches
Supporting individuals with dementia requires a holistic approach that goes beyond medication. Non-pharmacological strategies can help manage symptoms, reduce distress, and enhance quality of life. This page provides resources on evidence-based approaches such as music therapy, sensory stimulation, personalized routines, and environmental modifications to support well-being and comfort for individuals living with dementia at home […]
External Resources: Pain Assessment
Recognizing and managing pain in individuals with dementia can be challenging, as they may have difficulty expressing their discomfort. Caregivers need the right tools to assess pain effectively and ensure proper care. This page provides resources and guidance to help caregivers identify signs of pain, use evidence-based assessment tools, and implement strategies to improve comfort […]
External Resources: Care Planning
Caring for someone with dementia begins with understanding their unique needs and having the right supports at hand. Whether you’re caring for someone living in a private home or an assisted living community, the right resources can help ensure their safety, well-being, and quality of life. This page provides practical tools, guides, and supports to […]
Dementia Care Card: Supporting Nutrition and Hydration
This card is also available for downloading and printing on an 8.5 x 11 size paper.
Dementia Care Card: Honoring Informed Consent
This card is also available for downloading and printing on an 8.5 x 11 size paper.
Dementia Care Card: Palliative and Hospice Care
This card is also available for downloading and printing on an 8.5 x 11 size paper.
Fact Sheet: Informed Consent to Dementia Care & Services
Download the Informed Consent Fact Sheet Download the Informed Consent Care Card
Dementia Care Card: Therapy Services
This card is also available for downloading and printing on an 8.5 x 11 size paper.
Dementia Care Card: Psychotropic Medications
This card is also available for downloading and printing on an 8.5 x 11 size paper.
Dementia Care Card: Pressure Ulcers
This card is also available for downloading and printing on an 8.5 x 11 size paper.
LTCCC Alert: Latest Nursing Home Staffing Data Indicate Average Facility Operating Over 40% Short of Expected Registered Nurse Staffing (Q4 2024) GalleryLTCCC Alert: Latest Nursing Home Staffing Data Indicate Average Facility Operating Over 40% Short of Expected Registered Nurse Staffing (Q4 2024)
Alabama, Alaska, Alerts, Arizona, Arkansas, California, Colorado, Connecticut, Delaware, District of Columbia, Florida, Georgia, Hawaii, Idaho, Illinois, Indiana, Iowa, Kansas, Kentucky, Louisiana, Maine, Maryland, Massachusetts, Michigan, Minnesota, Mississippi, Missouri, Montana, Nebraska, Nevada, New Hampshire, New Jersey, New Mexico, New York, North Carolina, North Dakota, Nursing Home Information, Ohio, Oklahoma, Oregon, Pennsylvania, Rhode Island, South Carolina, South Dakota, Staffing, Tennessee, Texas, Utah, Vermont, Virginia, Washington, West Virginia, Wisconsin, Wyoming
LTCCC Alert: Latest Nursing Home Staffing Data Indicate Average Facility Operating Over 40% Short of Expected Registered Nurse Staffing (Q4 2024)
The following is an alert for LTCCC’s Q4 2024 staffing report. Download national, state, community, and facility-level data at NursingHome411.org and explore our interactive staffing map.
June 4, 2025 – Today LTCCC is releasing its latest quarterly report on the staffing levels for every U.S. nursing home (in compliance with federal reporting […]
Senior Care Policy Brief: 90% Miss the Mark
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
May 30, 2025.
NEWSFLASH
- A recent investigation by The Guardian has […]
Webinar: The Historic Impact of COVID-19 on Nursing Homes and the Failed Response
Register for LTCCC’s June Webinar.
Presenter: Kenneth Levine PowerPoint Slides (PDF)
Senior Care Policy Brief: Dining on Dimes
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The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
May 15, 2025.
NEWSFLASH
- A new report from the U.S. Government […]
LTCCC Alert: Nine in 10 Nursing Homes Fall Short of Expected Staffing, New Federal Data Show (Q3 2024) GalleryLTCCC Alert: Nine in 10 Nursing Homes Fall Short of Expected Staffing, New Federal Data Show (Q3 2024)
Alabama, Alaska, Alerts, Arizona, Arkansas, California, Colorado, Connecticut, Delaware, District of Columbia, Florida, Georgia, Hawaii, Idaho, Illinois, Indiana, Iowa, Kansas, Kentucky, Louisiana, Maine, Maryland, Massachusetts, Michigan, Minnesota, Mississippi, Missouri, Montana, Nebraska, Nevada, New Hampshire, New Jersey, New Mexico, New York, North Carolina, North Dakota, Nursing Home Information, Ohio, Oklahoma, Oregon, Pennsylvania, Rhode Island, South Carolina, South Dakota, Staffing, Tennessee, Texas, Utah, Vermont, Virginia, Washington, West Virginia, Wisconsin, Wyoming
LTCCC Alert: Nine in 10 Nursing Homes Fall Short of Expected Staffing, New Federal Data Show (Q3 2024)
The following is an alert for LTCCC’s Q3 2024 staffing report. Download national, state, community, and facility-level data at NursingHome411.org and explore our interactive staffing map.
May 2, 2025 – New federal data reveal that the overwhelming majority of U.S. nursing homes are operating with insufficient staffing to meet the basic needs […]
Below the Bare Minimum: Elder Justice “No Harm” Newsletter (Volume 7, Issue 3)
In the Elder Justice Newsletter, we highlight citations, including deficiencies related to abuse, neglect, and substandard care, that have been identified as not causing any resident harm. The goal of this brief newsletter is to shed light on the issue of so-called “no harm” deficiencies, which typically result in no fine or penalty to the nursing […]
Senior Care Policy Brief: Lawsuit Claims Years of Oversight Failures in Maryland
Subscribe to LTCCC’s Senior Care Policy Brief
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
April 30, 2025.
NEWSFLASH
Webinar: Privacy Violations & Abuse: The Hidden Dangers of Social Media in Nursing Homes
Register for LTCCC’s May Webinar.
Presenter: Eilon Caspi, Gerontologist and Dementia Behavior Specialist PowerPoint Slides (PDF)