Webinar: Dementia Care in the Community
Presenters: LTCCC’s Richard Mollot (Executive Director), Hayley Cronquist (Associate Director), Rachel Farber (Policy Fellow) PowerPoint Slides (PDF) Dementia Care in the Community Toolkit
Presenters: LTCCC’s Richard Mollot (Executive Director), Hayley Cronquist (Associate Director), Rachel Farber (Policy Fellow) PowerPoint Slides (PDF) Dementia Care in the Community Toolkit
June 16, 2025 – Today LTCCC is releasing its new Dementia Care in the Community Toolkit, a free online resource developed to support high-quality, person-centered dementia care for individuals living at home or in assisted living.
A growing number of people living with dementia receive care outside of nursing homes, yet there are no federal […]
As dementia progresses, individuals and their families may face complex decisions about care, comfort, and quality of life. This page offers resources on hospice and palliative care to support compassionate, person-centered approaches during the later stages of dementia. These resources provide guidance on managing pain and distress, honoring individual values and goals, and navigating end-of-life […]
High-quality dementia care starts with informed, compassionate caregivers. This page provides resources for dementia care trainings designed to strengthen knowledge, build practical skills, and promote person-centered approaches across all care settings. Whether you’re a family member, home care aide, assisted living staff member, or healthcare professional, these training programs offer valuable guidance on communication, behavior […]
Individuals living with dementia are at increased risk for preventable health issues like pressure ulcers and urinary tract infections (UTIs), especially when mobility or communication is limited. These conditions can cause significant pain, distress, and complications if not addressed promptly. This page includes resources to help caregivers and providers recognize early signs, implement prevention strategies, […]
Proper nutrition and hydration are critical to the health and well-being of individuals living with dementia, yet cognitive and physical changes can make eating and drinking more challenging over time. This page features resources to help caregivers and care providers support safe, enjoyable mealtimes and prevent common issues like weight loss, dehydration, and swallowing difficulties.
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Engaging in meaningful activities is essential to maintaining quality of life for individuals living with dementia. The right activities can support emotional well-being, preserve abilities, and reduce distress. This page offers resources with ideas and guidance for selecting and adapting activities that match a person’s interests, history, and current capabilities. Whether in the home, in […]
Psychotropic drugs—such as antipsychotics, antidepressants, and sedatives—are sometimes prescribed to individuals living with dementia to manage behavioral symptoms. However, these medications carry serious risks and are not the most effective or appropriate response. This page includes resources to help families, caregivers, and professionals understand the potential harms, explore safer alternatives, and make informed decisions about […]
This card is also available for downloading and printing on an 8.5 x 11 size paper.
Therapy services can play a vital role in supporting the health, independence, and quality of life of individuals living with dementia. This page includes resources on occupational, physical, and speech therapy interventions that are tailored to the unique needs and abilities of people with dementia. These services can help maintain functional skills, reduce fall risk, […]
Informed consent is a fundamental right that ensures individuals understand and voluntarily agree to decisions about their care. For people living with dementia, navigating consent can become more complex as cognitive changes progress. This page includes external resources to help caregivers, families, and professionals support ethical, person-centered decision-making.
Resources
A Practical Guide to […]
Creating a safe and supportive home environment is essential for individuals living with dementia. This page includes resources to help caregivers, families, and care providers identify and reduce potential hazards, promote independence, and respond to changing needs over time. From practical home modification tips to guidance on preventing wandering and falls, these tools can support […]
This page features a selection of external resources on innovative, dementia-friendly initiatives designed to enhance quality of life and promote dignity for individuals living with dementia. From small-scale, homelike models of care to larger community concepts like dementia villages, these approaches emphasize safety, autonomy, and social connection. Whether you’re a caregiver, advocate, policymaker, or provider, […]
Caring for someone with dementia can be both rewarding and challenging. As the condition progresses, caregivers often face new obstacles in communication, daily routines, and emotional well-being. This page provides resources to help caregivers navigate these challenges, promote independence, and enhance the quality of life for individuals living with dementia—whether at home or in a […]
Supporting individuals with dementia requires a holistic approach that goes beyond medication. Non-pharmacological strategies can help manage symptoms, reduce distress, and enhance quality of life. This page provides resources on evidence-based approaches such as music therapy, sensory stimulation, personalized routines, and environmental modifications to support well-being and comfort for individuals living with dementia at home […]
Caring for someone with dementia begins with understanding their unique needs and having the right supports at hand. Whether you’re caring for someone living in a private home or an assisted living community, the right resources can help ensure their safety, well-being, and quality of life. This page provides practical tools, guides, and supports to […]
Download the Informed Consent Fact Sheet Download the Informed Consent Care Card
Click to download user-friendly, searchable data on AP drugging rates for Q4 2023.
June 3, 2024 – Each week, dangerous antipsychotic (AP) drugs are administered to approximately 250,000 nursing home residents, often without clinical justification. These medications pose significant risks for elderly individuals, including heart attacks, strokes, Parkinsonism, falls, and even death. […]
Click to download user-friendly data on AP drugging rates for NY nursing homes in Q3 2023.
March 18, 2024 – Each week, roughly 250,000 nursing home residents are given dangerous antipsychotic (AP) drugs. In most cases these dangerous drugs are administered without clinical justification.
AP drugs are associated with significant adverse outcomes […]
2022 has been a pivotal year in long-term care and we at LTCCC are grateful for all those who have been writing and reporting about the important issues along the way.
That’s why we’re sharing 22 of our favorite articles of 2022 (plus, a few extras!). Below is a list of investigative stories, government reports, and […]
Recording of LTCCC’s Oct. 18 webinar, “What Does Good Care Look Like for People Living with Dementia?” ft. Dr. Jonathan Evans. Video and slides available at https://nursinghome411.org/webinar-dementia-care/.
Presenter: Dr. Jonathan Evans
PowerPoint Slides (PDF) Dementia Care Advocacy Toolkit NursingHome411 Podcast
Presenters: Richard Mollot (LTCCC) and Tony Chicotel (CANHR)
PowerPoint Slides (PDF) Dementia Care Advocacy Toolkit AP Drugging Data
Program: What Does Good Care Look Like for People Living with Dementia?
Date: Tuesday, October 18, 1pm (ET)
Register: https://bit.ly/webinar-dementia
Presenter: Dr. Jonathan Evans
Note: Video and other webinar materials will be available after the program at https://nursinghome411.org/webinar-dementia-care.
Click to download user-friendly data on AP drugging rates for NY nursing homes in Q2 2021.
February 23, 2022 – Inappropriate antipsychotic (AP) drugging is a pervasive problem in nursing homes across New York State, with nearly one in five residents receiving AP drugs, most without clinical justification. Too often, these […]
Presenters: Richard Mollot (LTCCC Executive Director) and Eric Goldwein (LTCCC Policy & Communications Director).
PowerPoint Slides (PDF)
The following is an alert for the Q2 2021 Antipsychotic Drugging Rates. To access the data, click here.
January 11, 2022
Register: https://bit.ly/webinar-assisted-living
Presenter: Paula Carder, Ph.D. is a professor with the OHSU-PSU school of Public Health and director of the institute of aging at Portland State University. Dr. Carder’s research explores the relationship between state regulatory requirements and daily practices associated with medication administration and staffing in assisted living facilities.
Tena Alonzo, dementia care expert, presents on strategies to reduce reliance on antipsychotics for people living with dementia at LTCCC’s June webinar. For video and other materials from this program, visit nursinghome411.org/webinar-comfort-matters/.
Note: This program was recorded on June 15th, 2021.
Sign up for the June 15 webinar (1pm EST), “Why Comfort Matters: Reducing Reliance on Antipsychotics for People Living with Dementia,” featuring Tena Alonzo.
About the speaker: Tena Alonzo is a healthcare professional with expertise in caregiving practices for people with thinking or memory disorders. She has 35 years of experience as a long-term care […]
The inappropriate antipsychotic drugging of nursing home residents is a widespread and serious problem. Below is information on the antipsychotic drugging rates for all licensed nursing homes, by state, for the fourth quarter of 2019. We also recommend viewing our Issue Alert on Antipsychotic Drugging and our Dementia Care Advocacy Toolkit, which includes […]
The inappropriate antipsychotic drugging of nursing home residents is a widespread and serious problem. Below is information on the antipsychotic drugging rates for all licensed nursing homes, by state, for the third quarter of 2019. We also recommend viewing our Issue Alert on Antipsychotic Drugging and our Dementia Care Advocacy Toolkit, which includes […]
Each file includes information on:
To […]
Watch Webinar on YouTube Dementia Care Advocacy Toolkit Nursing Home Data
LTCCC’s handouts provide basic, easy-to-understand information on issues that are important to residents and families. They are free to print and use by resident and family councils, LTC ombudsmen, and anyone else interested in improving understanding of basic standards. For more in-depth information on these issues, please check out our fact sheets and the […]