This program explores how faith communities can play a meaningful role in supporting individuals caring for loved ones living with dementia. Caregiving is often an invisible and isolating experience, and many caregivers within congregations may be struggling without openly asking for help. The session highlights the unique opportunity for faith leaders and community members to […]
This page highlights a variety of studies and reports exploring dementia care outside of institutional settings.
Resources
Patient and Caregiver Outcomes of Health System, Community-Based, and Usual Dementia CareA Prespecified Analysis of the Dementia Care Study (D-CARE) Randomized Clinical Trial. (2025). David B. Reuben, Alan B. Stevens, Thomas M. Gill, et al.
Presenters: LTCCC’s Richard Mollot (Executive Director), Hayley Cronquist (Associate Director), Rachel Farber (Policy Fellow) PowerPoint Slides (PDF) Dementia Care in the Community Toolkit
June 16, 2025 – Today LTCCC is releasing its new Dementia Care in the Community Toolkit, a free online resource developed to support high-quality, person-centered dementia care for individuals living at home or in assisted living.
A growing number of people living with dementia receive care outside of nursing homes, yet there are no federal […]
As dementia progresses, individuals and their families may face complex decisions about care, comfort, and quality of life. This page offers resources on hospice and palliative care to support compassionate, person-centered approaches during the later stages of dementia. These resources provide guidance on managing pain and distress, honoring individual values and goals, and navigating end-of-life […]
High-quality dementia care starts with informed, compassionate caregivers. This page provides resources for dementia care trainings designed to strengthen knowledge, build practical skills, and promote person-centered approaches across all care settings. Whether you’re a family member, home care aide, assisted living staff member, or healthcare professional, these training programs offer valuable guidance on communication, behavior […]
Individuals living with dementia are at increased risk for preventable health issues like pressure ulcers and urinary tract infections (UTIs), especially when mobility or communication is limited. These conditions can cause significant pain, distress, and complications if not addressed promptly. This page includes resources to help caregivers and providers recognize early signs, implement prevention strategies, […]
Proper nutrition and hydration are critical to the health and well-being of individuals living with dementia, yet cognitive and physical changes can make eating and drinking more challenging over time. This page features resources to help caregivers and care providers support safe, enjoyable mealtimes and prevent common issues like weight loss, dehydration, and swallowing difficulties.
[…]
Engaging in meaningful activities is essential to maintaining quality of life for individuals living with dementia. The right activities can support emotional well-being, preserve abilities, and reduce distress. This page offers resources with ideas and guidance for selecting and adapting activities that match a person’s interests, history, and current capabilities. Whether in the home, in […]
Psychotropic drugs—such as antipsychotics, antidepressants, and sedatives—are sometimes prescribed to individuals living with dementia to manage behavioral symptoms. However, these medications carry serious risks and are not the most effective or appropriate response. This page includes resources to help families, caregivers, and professionals understand the potential harms, explore safer alternatives, and make informed decisions about […]
Therapy services can play a vital role in supporting the health, independence, and quality of life of individuals living with dementia. This page includes resources on occupational, physical, and speech therapy interventions that are tailored to the unique needs and abilities of people with dementia. These services can help maintain functional skills, reduce fall risk, […]
Informed consent is a fundamental right that ensures individuals understand and voluntarily agree to decisions about their care. For people living with dementia, navigating consent can become more complex as cognitive changes progress. This page includes external resources to help caregivers, families, and professionals support ethical, person-centered decision-making.
Resources
A Practical Guide to […]
Creating a safe and supportive home environment is essential for individuals living with dementia. This page includes resources to help caregivers, families, and care providers identify and reduce potential hazards, promote independence, and respond to changing needs over time. From practical home modification tips to guidance on preventing wandering and falls, these tools can support […]
This page features a selection of external resources on innovative, dementia-friendly initiatives designed to enhance quality of life and promote dignity for individuals living with dementia. From small-scale, homelike models of care to larger community concepts like dementia villages, these approaches emphasize safety, autonomy, and social connection. Whether you’re a caregiver, advocate, policymaker, or provider, […]
Caring for someone with dementia can be both rewarding and challenging. As the condition progresses, caregivers often face new obstacles in communication, daily routines, and emotional well-being. This page provides resources to help caregivers navigate these challenges, promote independence, and enhance the quality of life for individuals living with dementia—whether at home or in a […]
Supporting individuals with dementia requires a holistic approach that goes beyond medication. Non-pharmacological strategies can help manage symptoms, reduce distress, and enhance quality of life. This page provides resources on evidence-based approaches such as music therapy, sensory stimulation, personalized routines, and environmental modifications to support well-being and comfort for individuals living with dementia at home […]
Recognizing and managing pain in individuals with dementia can be challenging, as they may have difficulty expressing their discomfort. Caregivers need the right tools to assess pain effectively and ensure proper care. This page provides resources and guidance to help caregivers identify signs of pain, use evidence-based assessment tools, and implement strategies to improve comfort […]
Caring for someone with dementia begins with understanding their unique needs and having the right supports at hand. Whether you’re caring for someone living in a private home or an assisted living community, the right resources can help ensure their safety, well-being, and quality of life. This page provides practical tools, guides, and supports to […]
Subscribe to LTCCC’s Senior Care Policy Briefing
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
April 30, 2024.
Subscribe to LTCCC’s Senior Care Policy Briefing
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
April 15, 2024.
Subscribe to LTCCC’s Senior Care Policy Briefing
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
March 29, 2024.
Subscribe to LTCCC’s Senior Care Policy Briefing
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
March 15, 2024.
Subscribe to LTCCC’s Senior Care Policy Briefing
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
February 29, 2024.
Subscribe to LTCCC’s Senior Care Policy Briefing
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
February 15, 2024.
Subscribe to LTCCC’s Senior Care Policy Briefing
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
February 2, 2024.
LTCCC testimony calls for national standards promoting quality, safety, and integrity in assisted living
January 26, 2024 – Yesterday, the United States Senate Special Committee on Aging held a hearing, Assisted Living Facilities: Understanding Long-Term Care Options for Older Adults, co-chaired by Senator Bob Casey (D-PA) and Senator Mike Braun (R-IN).
“It’s been […]
Subscribe to LTCCC’s Senior Care Policy Briefing
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
January 19, 2024.
Subscribe to LTCCC’s Senior Care Policy Briefing
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
December 28, 2023.
Subscribe to LTCCC’s Senior Care Policy Briefing
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
December 19, 2023.
Subscribe to LTCCC’s Senior Care Policy Briefing
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research.
Read the full Senior Care Policy Briefing below or download here.
November 30, 2023.
Subscribe to LTCCC’s Senior Care Policy Briefing
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research. Topics in this edition include:
Subscribe to LTCCC’s Senior Care Policy Briefing
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research. Topics in this edition include:
Subscribe to LTCCC’s Senior Care Policy Briefing
The Senior Care Policy Briefing covers important long-term care issues by highlighting policy updates, news reports, and academic research. Topics in this edition include:
The LTC Journal covers important long-term care issues by highlighting policy updates, news reports, and academic research. Topics in this edition include:
The Winter LTC Journal is here! The LTC Journal covers important long-term care issues by highlighting policy updates, news reports, and academic research. Topics in this edition include:
Presenter: Paula Carder, Ph.D.
Dr. Carder is a professor with the OHSU-PSU School of Public Health and director of the Institute of Aging at Portland State University. Dr. Carder’s research explores the relationship between state regulatory requirements and daily practices associated with medication administration and staffing in assisted living […]
Register: https://bit.ly/webinar-assisted-living
Presenter: Paula Carder, Ph.D. is a professor with the OHSU-PSU school of Public Health and director of the institute of aging at Portland State University. Dr. Carder’s research explores the relationship between state regulatory requirements and daily practices associated with medication administration and staffing in assisted living facilities.
Dear Governor Hochul:
Welcome to your new office – we are excited to work with your administration to promote the health and well-being of New York seniors, disabled individuals, and families.
We are writing today to urge you to use your new office to act quickly to protect the lives and dignity of residents in nursing homes, […]
LTCCC is providing a user-friendly spreadsheet (updated monthly) tracking COVID-19 vaccinations for residents and staff in New York’s nursing homes (NHs) and assisted living facilities (ALFs). COVID-19 vaccination are self-reported and published by facilities daily via the New York State Department of Health’s (NY DOH) HERDS survey.
Download NY LTC COVID Vaccination Data (12/15/21)
Note: […]
LTCCC executive director Richard Mollot takes us back to the basics and explains the difference between:
Note: Episode recorded July 2020
Background reading and references:
Join us for a free webinar providing an overview of assisted living and other types of adult care facilities in New York, and how they differ from and in what ways they are similar to nursing homes. We will discuss how these facilities are funded and regulated, and the essentials of residents’ rights and […]
On November 14, 2019, The U.S. House Ways & Means Committee held a hearing, Caring for Aging Americans. LTCCC’s executive director, Richard Mollot, testified at the hearing on the serious challenges facing individuals and families who turn to nursing homes and assisted living for residential care. On the right is Richard’s opening statement to the […]
Watch webinar on YouTube Read the Report Download the Fact Sheets
This report, part of a three year study, describes findings from ten on-site visits to assisted living facilities in NYS by project staff. It discusses aging-in place, autonomy, risk-taking, staffing, finances and regulations.
