The results of a Commonwealth Fund project detailing the importance of consumer participation in states' Medicaid nursing facility reimbursement policy making. The products of the project include: a primer for consumers participation, a brief for policy makers on the need to have consumers "at the table," and a series of webinars for consumers explaining Medicaid [...]
Consumer Response: Recommendations and Guidelines of the New York State Medicaid Redesign Team’s Managed Long Term Care Implementation and Waiver Work Groups and Their State Implementation
Two briefs, one for consumers and one for policy makers.
On November 30, 2011, the U.S. Senate Special Committee on Aging Held a Hearing: "Overprescribed: The Human and Taxpayers' Costs of Antipsychotics in Nursing Homes." This is LTCCC's statement. The hearing recording and materials are available at http://www.aging.senate.gov/hearings/overprescribed-the-human-and-taxpayers-costs-of-antipsychotics-in-nursing-homes.
A study of the status of care and quality of life in New York State assisted living facilities and residences and the state's oversight and enforcement of state rules.
Statement by LTCCC's Executive Director before Medicaid Redesign Team hearing on need to involve those who will be most affected; need to remember the purpose of the Medicaid program to ensure safety and appropriate care; need to ensure assess to least restrictive setting; and the need for adequate staffing for state's care monitoring function. [...]
Government Monitoring & Oversight of Nursing Home Care: The Relationship Between Federal and State Agencies
This report presents an in-depth assessment of how well the state and federal inspection agencies are working to jointly enforce minimum safety, health and quality of life standards in U.S. nursing homes. Press Release
These booklets, in English and Chinese, help consumers understand long term care and help them think about what their care needs are, where they want to get care, how they can pay for care and what their rights are. In addition to questions they can ask themselves as they plan, the booklets also list a [...]
This report provides an overview and assessment of long term care programs in terms of consumers' needs and desires and makes recommendations for how system restructuring can better meet the needs of consumers. Executive Summary
This study gathered information from the 35 states using a case-mix reimbursement system to reimburse nursing homes for the care of their Medicaid residents (including NYS). The report gives detailed information on how these states are encouraging access, for hard to place residents, quality as well as efficiency. Using such information as well as telephone [...]
With funding from the New York Community Trust, LTCCC hosted two roundtable discussions on the future of nursing homes in NY State. The roundtables brought together leaders from government, provider, consumer, worker and philanthropy to identify the challenges and develop recommendation for future action. This report describes the roundtables and presents over 100 recommendations for [...]
This report provides an overview of pay for performance for stakeholder and policy makers, including special sections on issues and consumer concerns, selected experiences to date and recommendations for ensuring that a pay for performance program truly improves nursing home resident care and is not merely a bonus awarded to "good" providers.
New York’s Single Point of Entry for Long Term Care: A First Year Assessment of Consumer Experience With Recommendations for the Future
This reports examines first year experience with NY Connects, NY State's single point of entry for long term care, and provides recommendations to ensure that NY Connects truly serves New York's diverse consumer population as it is further implemented. The report includes a state-wide survey of New Yorkers' knowledge of, and experience with, the system. [...]
This presentation was produced for a workshop developed to educate communities about culture change.
Toolkit for Consumer Action to Improve Nursing Home Staffing Levels Those of us concerned about nursing home residents know that there are widespread problems. Too many residents in communities across the country do not receive appropriate care. For instance, far too many people are confined to their beds or a chair because there is insufficient [...]
Vulnerable nursing home residents depend on the state to hold nursing home providers accountable for the care they receive by identifying problems during regular inspections and through investigations of complaints. This report, supported with a grant from the New York Community Trust, examines the effectiveness of each regional office in ensuring resident safety and [...]
A white paper for the new administration & state leadership to facilitate implementation of policies that better meet the future needs and preferences of all our citizens.
Despite strong legal requirements for nursing homes to provide good care and dignified conditions for residents, the nursing home crisis continues. This report, supported with a grant from the Robert Sterling Clark Foundation, identifies the primary legal mandates that are too often disregarded by both nursing homes and government surveillance and provides pragmatic as well [...]
Federal Civil Monetary Penalties (CMPs) and State CMPs/fines are imposed by the regulatory agencies that license nursing homes if a nursing home does not comply with regulatory standards. These fines can be used to fund innovative programs to improve the lives of nursing home residents. This study, supported with a grant from the Commonwealth Fund, [...]
Single Point of Entry for Long Term Care and Olmstead: An Introduction and National Perspective for Policy Makers, Consumers and Advocacy Organizations
A study, supported by the Robert Sterling Clark Foundation, of POE and Olmstead implementation across the U.S. and a survey of groups that work to improve care for consumers.
Study, supported by the NY Community Trust, of the effectiveness of the effectiveness of the inspection and complaint systems.
You’re Never Too Old To Feel Good : Guidebooks and video to help older adults identify mental health issues and get care to feel better
MENTAL HELP GUIDES AND VIDEO FOR OLDER ADULTS A guide for older adults. This guide will help older adults identify how they have been feeling and decide if there are parts of their lives that they can feel better about. It gives information on what they can do to take control and take steps to [...]
The following guides can be used to improve quality of life and help residents maintain choice and independence. The Guide for Potential Residents helps potential residents and their families choose an assisted living community that is the right for the resident. The Guide for Current Residents helps people already in assisted living assess whether [...]
Description of a project in two nursing homes in New York City with a Ten-Step Guide to Improving Working Conditions.
Report on a study of consumer experience with postings in their nursing home(s), with recommendations for regulatory improvement.
What Makes for a Good Working Condition for Nursing Home Staff: What Do Direct Care Workers Have to Say?
This study is based on focus groups conducted in six nursing homes in NYC.
This is the final report of an in-depth three year study of assisted living. It includes an action agenda for consumers, providers and policy makers to help fulfill the promise of assisted living.
This report, part of a three year study, describes findings from ten on-site visits to assisted living facilities in NYS by project staff. It discusses aging-in place, autonomy, risk-taking, staffing, finances and regulations.
This position paper gives evidence of a staffing crisis in New York State nursing homes and documents the need for mandating staffing ratios in New York State nursing homes.
Improving the Option: Consumers’ Perspectives on New York State’s Managed Long Term Care Demonstration Project
This report, from LTCCC's committee on Managed Long Term Care, offers recommendations for protecting consumers of managed long term care. 1999.
This resource for nursing homes lists findings from interviews with nursing home staff. It offers concrete examples of ways to reduce costs and enhance revenue while maintaining quality.
Subacute Care in Nursing Homes: Consumer and Provider Perspectives on Benefits and Concerns; Recommendations for Oversight
Analyses of questionnaires sent to consumers across the country and providers in New York State. DOWNLOAD Part 1 DOWNLOAD Part 2
Subacute Care in Nursing Homes: What You Should Know for Those Seeking Subacute Care or Traditional Nursing Home Care
What is subacute care? What are the concerns and benefits? What questions to ask. For consumers and those working with consumers.